Informing coronary revascularization decisions in diabetic patients: moving knowledge to action: HeartHub.ca Patient Stories

 

You are invited share your personal experience(s) with heart disease and treatment as part of the study, “Informing coronary revascularization decision in diabetic patients: moving knowledge to action”.

One of the aims of this project, funded by the Heart and Stroke Foundation, was to develop online information resources based on research evidence and patient needs to better support treatment decisions made by doctors with their patients. Working together with patients and clinician partners, we have created HeartHub.ca to serve this purpose.
 
We ask that you provide us with a few sentences to briefly explain your experience with heart disease and treatment. This may include your direct experience as a patient, or your experience supporting someone with heart disease. We also ask that you include your age with your quote(s). This should take no longer than 5 minutes.
 
We may use all or parts of your story, but no language will be changed. Your quote(s) and age will be made publically available on the HeartHub.ca website, and may be used in future research publications on the HeartHub.ca project. Your contribution will be given a fake name, and any identifying information you include in your quote(s) will be removed.
 
There are no health risks involved in submitting your story; however, there is a small risk that the information may be recognizable or identifiable (linked back to you), even without using your real name. There are no direct benefits for you from your participation; however, by taking part in this study, you will contribute information that may benefit patients in the future.
 
Your confidentiality will be respected at all times and any information collected will remain de-identified (no connection will be made between your real identity and your patient story). Hard copies of all study documents will be kept in a locked cabinet in a secure office for at least five years. Electronic data will be stored on a secure server and accessed via a password-protected computer. After 5 years, all electronic records will be deleted and hardcopies shredded.
 
If you have any questions about the study, you can contact Dr. Kimberly Miller, study Principal Investigator, at 604-314-5656.
 
If you have any questions about your rights as a research participant or concerns about the way you were treated in this study, you can contact the Research Participant Complaint Line in the UBC Office of Research Ethics at 604-822-8598 or if long distance email RSIL@ors.ubc.ca. You can also contact Jeff Toward at the SFU Office of Research Ethics at 778-782-6593 or jtoward@sfu.ca.
 
Thank you in advance for your time and for sharing your valuable personal experience.
 
If a patient story is submitted, it will be assumed that consent has been given. Note that once your story is made publically available, you will not be able to withdraw it.